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As previously reported in MI, the system was originally meant to go live in September 2015 and subsequently in April 2016.
The system is “expected to go live in the summer of 2017, with [the] exact date to be finalised”, said the NCRI’s spokesperson.
MI has been told that delays have been predominately caused by the complexity of the data involved and the pathways by which it reaches the registry.
Separately, the most recent report released by the NCRI at the end of last month noted ongoing major reductions in mortality from childhood cancers, reflecting improvements in treatment and survival over recent decades.
The report found that childhood cancer mortality rates have declined significantly since the mid-to-late 1960s, by on average 2.5 per cent to 3 per cent per year, and fewer than 25 children aged under 15 years have died from cancer per year from the 1990s onwards, compared with 50-to-60 per year from the 1950s to the 1970s.
“Although childhood cancers are thankfully rare, their impact on families is high and the potential loss of years of life averages much higher than for adult cancers,” said Prof Kerri Clough-Gorr, Director of the NCRI.
“Monitoring of trends in these cancers is therefore important. While incidence appears to be increasing, the consensus internationally is that this may, to a large extent, reflect improvements in diagnosis.
“Treatment improvements have led to marked reductions in mortality from childhood cancer, but further work is needed to follow-up the growing numbers of survivors of childhood cancer, who may experience long-term health consequences related to their cancer treatment.”