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“Accurate, relevant and timely data is essential in order to improve health and social care by informing decision-making, monitoring diseases, planning services, informing policy making, conducting high quality research, and planning for future health and social care needs, both at national and local levels,” said HIQA’s Acting Director of Health Information Dr Kevin O’Carroll.
These draft standards which focus on the information governance practices and the management of national health and social care data collections in Ireland, will apply to all health and social care data collections that are established and maintained on a national basis, such as the National Cancer Registry Ireland (NCRI) and the National Physical and Sensory Disability Database (NPSDD), managed by the Health Research Board.
“A considerable amount of data is collected about health and social care services in Ireland. However, as in many other countries, our national health and social care data collections have evolved over time in a largely uncoordinated fashion. Although there are examples of very good practice, in some cases there is a lack of coordination and interoperability,” said Dr O’Carroll .